While Daniel was hanging out with his friends we left him in trusted hands with emergency precautions, but it was like leaving your newborn for the first time. But this time another angel made arrangements for us to be taken care of and for Rob and I to share some much needed time out together. For those of you who don’t know my lifestyle, I typically am used to eating out 5 -6 days a week for at least 2 of the meals of the day. Since this hasn’t happened in over 6 months, for me to go to a nice restaurant and order was a luxury beyond explaination at this point. I may have slightly frightened the waitress and Rob by the amount I ate and with the voracity at which I ate it. The food was phenomenal, the ambience was fabulous and of course the company was beyond compare. The conversation on the other hand, took me slightly off guard. Needless to say Rob and I had a little catching up to do after not really having a normal conversation in so long and this was nothing but normal. Of course I will not go into detail but I will admit Rob gets to see a lot of how I feel here on the blog right along with all of you. Even though we talk about the daily ins and outs of how things are going it is usually in the presence of Daniel. We don’t keep a lot from him, but last night I got a chance to see a bit more of a different side of how Rob is feeling and I let him speak his mind. I didn’t expect it at a nice restaurant, mid second entrée (yes you read that right). I was totally taken aback and was surprised to find myself crying at the most unexpected of times (and it was the ugly cry too). Just when you thought you were out for a nice night and in a good place with everything, you are reminded that you are still in the thick of it and your life has really been changed forever, but what I really realized is how this has effected each of us so very differently. We each have a different perspective on things and are feeling so differently yet so strongly about things still. Things are still very fresh and raw. Hmmm. Good thing I had a drink in hand. I am normally a light weight, but not having a drink in so long tonight it certainly didn’t hurt to have a tasty cocktail on board. Overall it was a lovely night and I am so glad it turned out without incident. It of course turned out later than we expected. An hour and a half turned into 2 and a half and this morning when we needed to be at the clinic for check up and labs you would have thought Daniel was the one with a hangover. He said that he was glad he went but maybe shouldn’t have stayed so long.
Clinic was okay. Daniel’s ANC has dropped and is quite low again so he will be getting home treatments of GCSF to boost his white count and overall numbers. We chose to give the treatment at home because he would rather be there than spend an extra 5 minutes at the hospital. I can’t blame him. Only problem with this is that that means on top of all the other meds we know have to fit one more IV treatment into the mix. It is fine. It is just time consuming, when we are all tired. Daniel’s BKvirus is much better as far as symptoms but he is having to remain on IV fluids at night to keep him fluid so to speak. He is okay with that for now and it makes him feel better. It keeps him up and pishin all night but helps him feel better so he will keep on that regimen. We have completely eliminated all narcotics from our menu which is most important, so at last count we are now down on pill count up on IV treatment so I think it is about even. Oiy.
Well tonight we will gladly say GOOD RIDDANCE to a shitty 2014 and all of our medical nightmares. My sister’s breast cancer diagnosis and long treatment, my decision to have a double mastectomy and reconstruction, Daniel’s continued pain and struggles ending in his shocking diagnosis of Cancer and his heroic triumph of a rare Leukemia and finishing off with a successful Bone Marrow Transplant to cure him completely. Well I would say that is one for the books. I would like to close this chapter and never remember it, but if I did that I wouldn’t be able to recognize where we have come in our journey and realize our great accomplishments.
Wishing all a happy but most of all healthy new year. Because if you don’t have your health…..