Beginning early with a doctors appointment for myself after running late to the appointment because of traffic always makes me crazy, a small spot of pleasure came when I realized I was in the car alone for about 35 minutes without Daniel and I got to listen to the early morning radio show that I haven’t listened to for over a year. I caught myself laughing out loud listening and realized how much I missed this regular banter and caller chit chat over the same heavy rap and hip hop music the boys listen to. Hmmm??? After my appointment for my upcoming revision surgery I started to get more and more anxious awaiting the dreaded Tuesday numbers call. I know it’s not Tuesday but the lab was closed on Monday for Memorial Day so instead our appointment was yesterday and Tuesdays wait became Thursday’s wait. They only run this test on Tuesday and Thursdays. So now I have already moved this surgery once because of thinking we were being readmitted to the hospital and again yesterday rwe were ready to pull the trigger today on readmittance today if Daniel’s virus numbers were not down from the last weeks so now I am thinking can we get him in and out of the hospital in two weeks before my surgery date, or can we be so lucky to not have to be admitted at all and finally get off treatment? Will I be able to have a little bit of time to myself to recover from my procedure? And sure enough the numbers weren’t coming in fast enough to ease my mind. I needed to go on with my day. No rest for the wicked.
Off to running errands while Daniel was working with his teacher to finish up his freshman year. By late day no call and I am starting to feverishly stack and prepack. Clean clean, clean, laundry, no nails left at all and aftern calling the hospital three more times and no results had come in yet I had resigned myself to the fact that we wouldn’t get the results until at least late tomorrow now and then couldn’t admit until Monday then that delays everything again and that means no way would he be out for my surgery , up goes my blood pressure… and the phone rings. I know the phone number of course and take a long deep breath and look at the partially packed basket that always sits at the end of our room in preparation. It is Dr. Craddock who typically doesn’t make the phone call. He had to make the call personally. One because it is now after hours and two because he is such shock he had to do it himself, after so very long, Daniel has his first NEGATIVE cmv level. Hallefuckingluyah. Sorry. I start to cry. This is not at all what I expected and neither was it what Dr. Craddock expected either. In fact, he was really in shock. So what does this mean? Nothing as far as a change in treatment yet, but that is a good thing and most importantly, no hospital. Yes we go back to a regular Monday testing schedule and can go back up and be back to readmitting threats again for next Tuesday BUT I think we are RID OF OLD CMV for good ‘pfupfupfu’. In a nutshell treatment stays the same for a few more weeks of negative reads before being sure enough to change anything, then we will make a slow and slight decrease before a larger one. Then we will determine whether we are ready to see if Daniel can take this new immune system out for a test drive. With this new free weekend ahead and all the clean laundry ready to go,we went see my mother in law in her new place at a rehab center and my heart was crushed seeing how disoriented and scared she was at her first night at this new place. I asked Rob if I could stay with her as I didn’t have the heart to leave her in her new and lonely surroundings when I knew she must have had as many questions as I did. Rob and Daniel were both adamant that I most certainly could not stay because of the exposure risks for Daniel and that I in no way could not risk getting sick. I knew this but I almost felt like I did with Daniel at the Children’s Hospital when you can’t leave your child, but this is a parent. What a terrible terrible feeling. I hope it gets better for her and I hope the transition is smooth for her in her new surroundings. I only wish that her new place was as reassuring and comforting to her as Children’s was to us and Daniel. Even he said when we left that we were so lucky to have had the care that we had. He commented on the treatment and care the nurses and C.A. gave us both and I just want that for her her right now.
So we will get my MIL settled and we will hope she will be well enough for us to visit and that we can keep visiting until we get her home and hope until my surgery I can prepare the house and boys enough to get a few days rest after. Hmmm, A girl can hope right?